TIPS FOR WORKING WITH INTERSEX PEOPLE

Most intersex people will identify as a man or a woman, and some will identify as non-binary or use a self-designated gender descriptor. Be aware that intersex people are not a homogeneous ‘third sex’.

Human anatomical and physiological variations do not in themselves constitute medical problems. Medical language, (such as using ‘disorders’, or ‘conditions’ for normal variations), can alter or undermine people’s informed consent to medical treatment.

People with intersex variations may describe themselves as intersex, but may also use other terms. It is preferable to use the term ‘intersex’ unless asked otherwise. Avoid leading with terms such as ‘hermaphrodite’, or ‘disorders of sex development’ which can convey negative connotations about intersex people.

Intersex is about physical sex characteristics, so avoid language that confuses intersex with transgender, or with sexuality. For example, avoid referring to someone’s intersex status as their gender. Terms like ‘diverse gender and sexuality’ do not include intersex. Talk about ‘intersex’ and ‘bodily diversity’ specifically.

With appropriate timing and manner, you could ask ‘how do you see yourself, what language do you prefer?’ Be guided by the language the person uses, including use or non-use of pronouns. Ask privately whenever possible, and ensure you are asking for sound reasons, and in context.

Avoid using terms that are often used to describe LGB people’s sexuality, such as ‘coming out’. Most intersex people do not have the type of experiences often associated with LGB people’s coming out. Intersex people are often informed by parents or medical professionals who may have held (or withheld) this information for some time, rather than a coming out process of self-discovery.

Inform yourself, and while creating openness to talk about many aspects of being intersex, be careful not to place the onus of your education upon the people you are supporting. Be aware of the context of asking questions to ensure you are not asking for your own curiosity or from judgement. Refer to information from intersex-led organisations (Rainbow Identity Association) to assist you to work in respectful, client-directed ways.

As with any client, it is intrusive to ask about intimate details such as genitals or sex and reproductive organs. Most people, including intersex people consider their physical characteristics as personal information that would not be disclosed in general conversation.

Many intersex people may have only discussed their intersex experiences and bodies in medical contexts. Speaking of these experiences in counseling settings may be useful for later sharing in other settings and relationships, and may help individuals to develop non-medical ways of discussing being intersex. Be affirming about intersex as a natural variation.

If a person learns of their intersex status later in life, they may need support to help understand their variation, as well as how it relates to their past, to current relationships and to their understanding of themselves.

Some people may have health needs arising from their intersex variation or medical interventions. These can include developmental delays, pain, trauma and bone health issues relating to medical interventions.

In working with sex and intimacy, be aware that intersex related surgeries and treatments may have affected sexual function and sensation. This can have effects on self-esteem, sexual well being

and relationships. Families and careers of intersex infants, children and adolescents also need affirmative support, and may also benefit from counseling. Access to peers and adults with intersex variations can help families and individuals to make better, more informed, choices about health needs.